Wednesday, September 14, 2011


Well i was remind of my blog recently and decided to update a little. Well since i last blogged alot has happened. Corrie deployed to Afghan. They finally figured out Sydney doesn't have a mass and may possible have tracemelcia. For the first two months of corries deployment we spent mostly in the hospital being sedated for those test. But so thankful no cancer. Addison had her normal ecko where we found some elevated pressures. They put us in the hospital where they did a sedated ecko and the pressures were really elevated so they flew us to Houston. It was kinda cool we got to ride in our own personal jet which was awesome. Our first jet plane ride. But coming down here wasn't to fun for the reason. Was really hard coming back to TCH. The last time we were here we lost Hope. We miss hope so much but i know we are in the best of hands and Hope is here watching over Addison. We found out Addison has a very rare form of Pulmonary Hypertension. There isn't much they can do. They have told us they can try doing a catherization and hopefully open some of those areas that's causing so much pressure. But not sure if it will work. They haven't gave us much hope for anything else. They did tell us they could do a lung transplant but of course she would have to get much worse for that to happen and it would come at a risk of also damaging her heart and possibility of her going into heart failure. So basically this all comes at a very high risk. We have been told she may not make it through any of this. We don't like to think that way we think shes going to make it no matter what. Shes such a beautiful strong little girl. We love her so much. Corrie was able to join us. Thankfully not sure if i could do it all alone. We have been so blessed since we have been in Houston. So many people have come together to pray for us and to be here to support us. We are so very thankful and so touched from all of this. We do know that either way this is going to be a long hurdle we have to get through but we know with all the support and love and prayers. We can make through anything when we put it all in gods hands. Hes amazing and i know hes watching over us all.

Tuesday, July 26, 2011

Feeling so blessed.

I have had so many blessings in my life. And so many people have touched me. Lately so many people have encouraged me. For a while now i have been having a hard time dealing with the loss of Hope. Blaming myself and feeling sorry for myself. Recently i found this wonderful support group of TTTS mothers who have been thru the same thing or some even worse. I have finally excepted that the decision we made was the right decision. Some people may not agree with it. And i completely understand for the longest time i didn't agree with it. All i wanted was my baby girl back and i don't think that will ever change. But i have excepted. I have two beautiful healthy girls.
I have found so many inspiring mothers. Im so blessed t
o have met these wonderful women. I have had the honor to be asked to speak on a radiothon for the children's hospital here at Scott and White. I'm so happy to be able to tell my story about how much this wonderful hospital has been there to help me. Tom they will be helping me a little more. We go for Sydneys second MRI. A couple of weeks ago they found a mass pushing her windpipe over and causing her to have some breathing problems. Praying we can figure out what this is and either can be removed easy or wont effect her. Its so scarey especially going thru this all alone. I know i can do this. Im Super mom.

Wednesday, January 19, 2011

5 years old.

My baby girl is going to be 5 tom. I cant believe it. 5 years old already. She is so excited to be 5. Shes like mommy im going to be 5 like all my friends. Im a big girl now. Shes thinks now i should let her wear make up cause shes 5. i dont think so maybe in a couple more years. She is having a big party at chucky cheese. Shes so excited she invited all her class and some of her little friends from here in texas. Looking back on her life. She has learns so many new things each year. Right now she can count in spanish. She can count to 100 and she knows all her shapes and colors. She knows all her abcs and knows so many things that start with each letter. She can read some and can add and subtract small numbers. Shes so smart. Im so blessed to have her in my life. She has changed my life and saved me from all the foolish stuff i use to do, I love u Kaylie and mommy is so proud of u.

Finally some good new.

Well this last couple months have been exhausting. I have been having alot of pain ever since the c section. Finally got a diagnosis. Endometriosis.
We also got some good news about sydneys head. They dont think its anything serious they just think her head is growing really fast and that her daddy has a big head. LOL. So she goes back in 3 months to have it check out again. The day before we went to the cardiologist and sydneys heart is sounding much better. We go back in july and have another echo to make its growing with her and getting better. Finally some good news. We are so glad we are finally getting some where. Its been a long road and im sure theres much more trials we will be put threw but i know we can handle it all. We are getting ready for corrie to leave again. He will be going to Jrtc on the 3rd and then when he gets back from that in march he will be getting ready to deploy again. This deployment is a little different. Hes going to Afghanistan which makes me every nervous and scared. Its seems like our lives never slow down. Its always something going on and something im worried about. I cant wait til we are older and we can just relax and not worry so much.

Sunday, January 9, 2011

Finally a new post

Wow there has been so much going on since my last post. Since my last post. We lost our beautiful angel Hope. We had Addison and Sydney. They stayed in Nicu for 5 weeks. We have had several hospital visits since then. But we are doing much better. We go to the dr at least 3 times a week to another dr. To say the least im a little tired of drs. We have finally made lots of friends. Kaylie started Pre K and has been having a blast. Shes so smart. She surprises me every day with all the thing she learns and tells me. Kaylies 5th birthday is coming up. We decided to have her party at Chucky cheese. Shes so excited. She wakes up every morning and asks me if its her party today. She already told me she wants to wear her princess dress. Right now trying to get all the invites handed out. So many things going on right now. Getting ready for corrie to leave for Jrtc. Soon after that he will be leaving for Afghanistan. Really dont want him to go but i know i cant change that. Its what he loves and i have to handle it all by myself. Im a army wife thats my job.